BARCELONA

Nurse in charge: Mª Antonia Martínez Momblán

Entity/Agency in charge: Centro de Investigación Biomédico de Enfermedades Raras (CIBERER 747)

Description

Cushing’s syndrome (CS) is a rare endocrine disease, characterized by the hypersecretion of cortisol, which is caused by a pituitary tumor (Cushing’s disease), or more rarely by an adrenal or ectopic tumor.

The first cause of morbidity and mortality in the CS is a cardiovascular disease. An eventuality that appears even when people with SC have been effectively treated by outing their hypercortisolism under control.

So far, there is not a comprehensive health care strategy for people with SC. A strategy that is necessary to address the complexity of this disease. This would provide with care that would enhance the quality of life, decrease morbidity and mortality and would increase comfort, wellbeing and self-control on the self-care area of people living with SC.

Despite the many complications SC produces and the presence of several potentially dangerous cardiovascular risk factors (central obesity, diabetes, ischemic heart disease, hypertension, dyslipidemia, etc.) that dis disease implies, currently, there are no educational programs addressed to solve the lack of information for people who live with SC.

This situation presents an opportunity for nurses to assume a key role in the education of this group of people. This could be done by developing and promoting specific educational tools designed to improve the quality of life of people with SC.

The documentation below is only available in Catalan and Spanish